I got off work with my mind almost conked out. I plopped on the bed, staring at the ceiling. I wanted to visit the patient but I was too tired. I need to rest. A few minutes of staring blindly into space seemed to help. Then several more minutes of checking the mail. I think I am feeling better now.
Deciding on which path to take is creating all this stress. Singapore would be the best option, but I dread the 3 1/2 hour travel. Can our patient take the stress of travel?
Going back to Manila to another specialist is another option. But who?
Staying home is the third option. If only the facilities here are better, I am sure the patient would choose this option. As it is, after the Manila experience, the hospital facilities here as well as personnel services leave much to be desired.
The Vidaza however, seems to be going well. Platelets, although still low are no longer yoyoing and reds are steady too.
Wouldn’t it be nice if someone chose for us? Then we wouldn’t have to be burdened with the responsibility of making the wrong choice.
Our patient has visibly perked up after seeing her grandchildren. She is in her element, in familiar places. Staying in one’s home is such a big morale booster. Care may not match the hospital but love, convenience, laughter and comfort more than make up for it.
A doctor comes everyday to check up on our patient. We have transferred our Red Cross contacts from Manila to our hometown and we now know how many bags to keep as back-up for the frequent transfusions.
And to be able to go home to O and my kids every night have been heavenly too.